For centuries, hemophilia was a dangerous genetic disorder with no treatment. Children with hemophilia often didn't make it to adulthood, since a bump or fall could cause massive internal bleeding. Hemophilia News Today: With factor IX deficiency, saying I have ‘hemophilia’ isn’t specific enough Columnist Jennifer Lynne is returning to her original diagnosis of "factor IX deficiency" to avoid the assumption that she has hemophilia A.

Understanding the Context

Observed on April 17, World Hemophilia Day aims to spread awareness regarding the challenges faced by those living with bleeding disorders. The focus is on timely care and access to treatment, which ... If you know anything about hemophilia, it’s probably that the condition was rampant in the British royal family in the 19th and early 20th centuries. Queen Victoria, who had nine kids, was highly ...

Key Insights

Times of San Diego: UC San Diego Health First to Offer Novel Gene Therapy for Hemophilia B UCSD Health is the only hemophilia B treatment center in San Diego that administers Hemegenix. (Photo courtesy of @UCSDHealth via Facebook) Hemophilia B is a rare, inherited bleeding disorder that ... UC San Diego Health First to Offer Novel Gene Therapy for Hemophilia B